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| Today is Rare Disease Day here in the USA.
I received this from the Cutaneous Lymphoma Foundation, but this can/should be used for lymphedema as well - everyone of us should click on that link and send a message:
Today is Rare Disease Day!
Join the Cutaneo us Lymphoma Foundation TODAY in sending a message to President Obama, Members of Congress and other elected officials that you care about rare diseases. NORD has a pre-drafted letter ready on their website that articulates support for Rare Disease Day and its key messages. You can also personalize the letter, allowing you to share your unique story and how you are affected by cutaneous lymphoma. (and/or lymphedema)
Follow this link and submit your message now. Then, post the link on your Facebook page, Twitter, website, etc. and encourage your friends and family to submit letters, too.
Thank you in advance for participating in Handprints on the Hill and spreading the word!
To learn more about Handprints On The Hill and other activities taking place in the U.S., visit the U.S. Rare Disease Day website.
To learn more about activities taking place around the world, visit the global Rare Disease Day website. | | |
| Management of limb lymphedema. Jan 2012 [Article in French] Source Unité de lymphologie, centre national de référence des maladies vasculaires rares, hôpital Cognacq-Jay, 15, rue Eugène-Millon, 75015 Paris, France. Abstract Keywords - Lymphedema;
- Treatment;
- Physiotherapy;
- Low stretch bandage;
- Compression
Lymphedema results from impaired lymphatic transport with increased limb volume. Cellulitis is the main complication, but psychological or functional discomfort may occur throughout the course of lymphedema. Lymphedema management is based on complete decongestive physiotherapy (multilayer low stretch bandage, manual lymph drainage, skin care, exercises). First phase of treatment leads to a reduction of lymphedema volume. The second phase stabilizes the volume and is based on elastic compression. Resection surgery is a useful tool in external genitalia lymphedema. Elsevier | | |
| Lymphatic complications after varicose veins surgery: risk factors and how to avoid them. 2012 Source Riviera Vein Institute, 6 Rue Gounod 06000, Nice, France. paulpittaluga@hotmail.com; drpittaluga@veinteachingcenter.com. Abstract INTRODUCTION: Lymphatic complication (LC) after varicose veins (VVs) surgery is an annoying event with a variable frequency in the literature. METHOD: Retrospective study reviewing all surgeries carried out for VVs from January 2000 to October 2010. Postoperative LC we reported: lymphatic fistula, lymphocele including the minor ones and lymphoedema. RESULTS: During the period studied, 5407 surgical procedures for VVs were performed in 3407 patients (74.7% women) with a mean age of 53.4 years. A postoperative LC occurred in 118 cases (2.2%): lymphocele on limb in 1.3%, inguinal LC (fistula or lymphocele) in 0.7% and a lymphoedema in 0.2%. The population with a LC was older (59.6 vs. 53.3 years, P < 0.05), had a higher frequency of C4-C6 (22.0% vs. 6.5%, P < 0.05), a higher incidence of obesity (31.4% vs. 5.4%, P < 0.05) and was more often treated by a redo surgery or a crossectomy stripping (48.3% vs. 13.4% and 38.1% vs. 21.8%, respectively, P < 0.05). We have observed a dramatic decrease in incidence of LC after January 2004 (1.3% vs. 5.3%, P < 0.05) corresponding to a new surgical practice for the treatment of VVs: stripping, crossectomy and redo surgery at the groin were less frequent (74.6% vs. 7.7%, 74.6% vs. 0.2% and 11.3% vs. 0.1%, respectively, P < 0.05), while isolated phlebectomy was more often performed during this period (78.4% vs. 8.4%, P < 0.05). CONCLUSION: LC after VVs surgery is not rare but frequently limited to lymphocele on limbs. Older age, more advanced clinical stage and obesity were associated with a higher frequency of LC. A mini-invasive and selective surg Phlebology | | |
| Near-infrared fluorescence imaging of lymphatics in head and neck lymphedema. Mar 2012 Source Division of Cardiology and Hyperbaric Medicine, Department of Internal Medicine at The University of Texas Health Science Center, Houston, Texas; Memorial Hermann Center for Lymphedema Management, Memorial Hermann - Texas Medical Center, Houston, Texas. erik.a.maus@uth.tmc.edu. Abstract BACKGROUND: Lymphedema is a complication that may occur after surgical resection and radiation treatment in a number of cancer types and is especially debilitating in regions where treatment options are limited. Although upper and lower extremity lymphedema may be effectively treated with manual lymphatic drainage (MLD) therapies and devices that use compression to direct proximal flow of lymph fluids, head and neck lymphedema is more challenging. METHODS AND RESULTS: Herein, we describe the compassionate use of an investigatory technique of near-infrared (NIR) fluorescence imaging to understand the lymphatic anatomy and function, help direct MLD, and use 3-dimensional (3D) surface profilometry to monitor response to therapy in a patient with head and neck lymphedema after surgery and radiation treatment. CONCLUSION: NIR fluorescence imaging provides a mapping of functional lymph vessels for direction of efficient MLD therapy in the head and neck. Additional studies are needed to assess the efficacy of MLD therapy when directed by NIR fluorescence imaging Wiley OnLine | | |
| The lymphovenous microsurgical shunts for treatment of lymphedema of lower limbs: indications in 2011. Source Department of Surgical Research and Transplantology, Medical Research Center, Polish Academy of Sciences, Warsaw, Poland - wlo@cmdik.pan.pl. Abstract The microsurgical lympho-venous shunts have become one of the generally accepted modalities in treatment of limblymphedema. This review highlight the indications for this procedure after over 40 years. This study was based on the personal experience of one surgeon and on the review of the literature. Patients with postinflammatory, postsurgical, idiopathic and hyperplastic lymphedema of lower limbs were included in the study. Basing on the review of results of the last 40 years the contemporary indications are: 1) lymphedema with local segmental obstruction but still partly patent distal lymphatics seen on functional lymphoscintigraphy (standard walking or pneumatic compression) and without an active inflammatory process in the skin, subcutaneous tissue and lymph vessels (DLA-dermatolymphangioadenitis); 2) classified according the etiology of lymphedema, this operation can bring about satisfactory results in cases of hyperplastic, postsurgical and postinflammatory types of lymphedema, whereas primary idiopathic lymphedema of non-genetic type should be treated with conservative means, although in a small number of cases an improvement was observed after lympho-venous shunting as long as 10 years. Microsurgical lymph node or lymphatic vessel to vein shunts have their established position among the therapy modalities for lymphedema of lower limbs in a strictly defined group of patients using lymphoscintigraphic imaging. Minerva Medica http://www.minervamedica.it/en/journals/international-angiology/article.php?cod=R34Y2011N06A0499 | | |
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