Today is Rare Disease Day here in the USA.

I received this from the Cutaneous Lymphoma Foundation, but this can/should be

used for lymphedema as well - everyone of us should click on that link and send

a message:


Today is Rare Disease Day!

Join the Cutaneo us Lymphoma Foundation TODAY in sending a message to President

Obama, Members of Congress and other elected officials that you care about rare

diseases. NORD has a pre-drafted letter ready on their website that articulates

support for Rare Disease Day and its key messages. You can also personalize the

letter, allowing you to share your unique story and how you are affected by

cutaneous lymphoma.  (and/or lymphedema)

Follow this link and submit your message now. Then, post the link on your

Facebook page, Twitter, website, etc. and encourage your friends and family to 

submit letters, too.

Thank you in advance for participating in Handprints on the Hill and spreading

the word!

To learn more about Handprints On The Hill and other activities taking place in

the U.S., visit the U.S. Rare Disease Day website.

To learn more about activities taking place around the world, visit the global

Rare Disease Day website.